Improving quality of life for all
6th Annual KY Congress on Spinal Cord Injury:
September 21, 2018
Save the date, and note the new location. Share the KCSCI flyer with all of the details!
KARRN 2018 Conference – Save the Date
Planning is in progress for our annual conference. Please plan to join us on Friday, August 24 at Perkins Conference Center in Richmond KY, and spread the word by sharing our Save the Date flyer.
Patient-Centered Research Data presented at American Physical Therapy Association
Pat Kitzman and Katy Sutton traveled to New Orleans for APTA’s annual Combined Sections Meeting and presented the poster entitled “The Road Back Home: Perceived Health and Healthcare Needs of People with Neurological Conditions Transitioning Back to Rural Communities.”
In this study, participants have given their time in interviews, work groups, half-day meetings and Zoom video conferencing. They have shared what their health information sources are and what their own health research priorities are. Participants are continuing with projects that address some of the research questions that they identified. The findings from this two-year project also will be presented at the annual conference of the American Occupational Therapy Association.
This poster won a blue ribbon from the Global Health Special Interest Group in the area of Social Responsibility. Only 2% of the meeting’s posters received this recognition.
New Support Group in Madison County
Carolyn Wallace shared with us some publicity surrounding the new ABLE support group in Berea, which met for the first time on February 26. The group is not condition-specific and is an opportunity to talk with others in non-medical terms. We look forward to hearing more as the group continues to develop.
Alter Ur Ego Video
Our KARRN member and fashion designer Heidi McKenzie was the opening speaker at the (dis)ABLED BEAUTY exhibit. Congrats, and great interview about your Alter Ur Ego company, Heidi! Click below to view!
WATCH: Designer Heidi McKenzie talks about her wheelchair-friendly clothing line, Alter Ur Ego, while delivering the opening speach for the (dis)ABLED BEAUTY exhibit in the Clarke Historical Library.
Posted by Central Michigan Life on Sunday, February 11, 2018
Call for posters: Appalachian Research Day
Community-based research begins at the local level, built upon the foundation of relationships with individuals, neighborhoods and groups who have common questions and concerns. Appalachian Research Day is an opportunity to join in the discussion and learn about findings from research studies that have occurred in local communities.
Registration and poster abstract submissions are now open.
Kentucky Stroke Registry Article Published
An in-press article in Journal of Stroke and Cerebrovascular Diseases documents the Kentucky Appalachian Stroke Registry. This registry was developed and has been utilized to determine healthcare needs. This article addresses how the registry’s aggregated data quantifies the relationship between stroke and diabetes.
Individual researchers can request data from the registry for their own projects, as well.
Thank you for your participation in our network over the past year! We wish you a safe and happy break and best wishes for the coming year. Our year-end report and December meeting minutes are provided for all of the latest details on our network and programs.
Please note that our KARRN offices (and UK) will be closed after December 22 and will reopen January 2.
We anticipate that everyone will be busy at the beginning of the year. KARRN will not meet in January, but we will be in contact by email to continue planning for the 2018 KARRN conference.
We’ll be back to our regular times for meetings in-person and by Zoom on Tuesday, February 6 at noon.
KARRN 2017 Conference – Recorded Sessions Available
- Did you attend our conference, and want to revisit some of what you heard?
- Were you unable to attend our conference, and want to see it archived?
- Did you love it, and want to share with colleagues?
All sessions can be accessed through our website’s Video Library in the lower left corner, or through the direct link: https://karrn.org/karrn-2017-conference-presentations/
Article Features Kentucky Care Coordination for Community Transitions
Hazard’s Navigator for neurological conditions, Keisha Hudson, is recognized in a UKNow article for the extensive and innovative services she provides in her community. The health outcomes, quality of life improvements and financial savings of the KC3T program are very much appreciated by patients, families and healthcare providers. Pictured at right is a recent Stroke Support Group. The group, which meets monthly, recently celebrated its two year anniversary.
PCORI Data presented at Kentucky Rural Health Association Conference
Pat Kitzman and Katy Sutton traveled to Bowling Green on November 16 to present the poster based on our PCORI project. The poster title was “The Road Back Home: Perceived Health and Healthcare Needs of People with Neurological Conditions Transitioning Back to Rural Communities.”
In this study, participants have given their time in interviews, work groups, half-day meetings and Zoom video conferencing. They have shared what their health information sources are and what their own health research priorities are. Participants are working to develop projects to address some of these research questions that they have identified. The findings from this two-year project also will be presented at the annual conferences of the American Occupational Therapy Association and the American Physical Therapy Association next year.
Congrats to authors Sheppard-Jones, Hunter and Bower
KARRN members Kathy Sheppard-Jones, Beth Hunter and Walter Bower have a new chapter published entitled “Capacity Building in Rural Communities Through Community-Based Collaborative Partnerships.” It is included in the book Disability and Vocational Rehabilitation in Rural Settings, which is now available.
For more information, see: https://link.springer.com/chapter/10.1007/978-3-319-64786-9_36
Waiver Program Update
KARRN member Carolyn Wallace and her son Aaron recently attended a focus group in Frankfort to provide stakeholder experiences, with the goal of shaping the services the Kentucky Department of Medicaid Services provides. In this current phase, input about the importance and impact of the community-based 1915(c) waiver program (which includes Acquired Brain Injury Medicaid waivers) can be sent by email to MedicaidPublicComment@ky.gov or by phone to Lori Gresham at (502) 564-7540.
Thank you, Carolyn, for representing! If anyone has any success stories, improvements that occurred through the use of the waiver program, or other input, please email or phone.
KARRN Conference Recap & Supplemental Resources
The 8th annual Kentucky Appalachian Rural Rehabilitation Network conference on August 29 from 9:00-5:00 at Eastern Kentucky University was well attended. We brought together 199 students, providers, and individuals and caregivers affected by stroke, spinal cord injury and traumatic brain injury.
As promised, our speakers have provided supplemental resources. CLICK HERE to view them.
A very special thank you to our sponsors:
- Paralyzed Veterans of America Education Foundation (conference grant)
- University of Kentucky College of Health Sciences
- Eastern Kentucky University
- Spinal Cord & Brain Injury Research Center (SCoBIRC)
- Kentucky AgrAbility
- Advanced Medical Group LLC
Much appreciation also goes to our speakers who generously provided their time and expertise: Jennifer Hastings, Don Helme, Beth Hunter, Patrick Kitzman, Jane Kleinert and our panelists: Jason Jones, Tonya and Mark Kincaid, Sasha Rabchevsky, Sara Salles, DO, Carolyn and Aaron Wallace.
To review the conference agenda and speaker information, click here.