Patient-Centered Research opportunity

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For the past 9 years the Kentucky Appalachian Rural Rehabilitation Network (KARRN) has worked to improve the health and healthcare for people with spinal cord injury (SCI), stroke, and brain injury (TBI) living in rural Kentucky through education, advocacy, research, and resources development. We have seen our community members and partners with SCI, stroke or TBI, encounter many health and healthcare related barriers which can make it hard to get the care needed and to make good health choices.

Our current project is focused on finding out what health information people with SCI, TBI and stroke need to make their health and healthcare decisions and where do they go for this information. We want to work with community members and have them participate, as team members, in developing research questions that they feel are important for improving their healthcare decision making and their quality of life at home.

We would really appreciate your help and would like to hear about your experiences and thoughts. At this time we are setting up small group meetings that would take no more than 2 hours of your time. The meetings will take place at a variety of places so hopefully one will be near you. As a thanks for time and effort we will be giving $20 gift cards to the people who take part in the group meeting. If you would like to learn more about sharing your experience related to living in a rural town and living with SCI, TBI or stroke you can contact:  Keisha Hudson at 606-439-3557 x 83452 or keisha.hudson@uky.edu;  Beth Hunter at eghunt2@uky.edu  or 859-218-0194; or Patrick Kitzman at phkitz1@uky.edu or 859-218-0580.

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