Registration Deadline Approaching for 2018 KARRN Conference

Register by August 10th for the 9th annual conference. This year’s focus is “Health and Wellness for Individuals with Disabilities.” The full agenda and speaker bios are available in our Conference Program. Please plan to join us on Friday, August 24, 2018 from 8:00 a.m. – 4:00 p.m.  Registration is free, lunch is included and 5.0 Physical Therapy CEUs have been approved. If you have any questions, contact Julie Brock.

Our conference is unique, in that it combines an audience of students (future healthcare providers), current healthcare providers, and individuals with neurological conditions and their caregivers.

End of Year Announcements

Thank you for your participation in our network over the past year! We wish you a safe and happy break and best wishes for the coming year. Our year-end report and December meeting minutes are provided for all of the latest details on our network and programs.

Please note that our KARRN offices (and UK) will be closed after December 22 and will reopen January 2.

We anticipate that everyone will be busy at the beginning of the year. KARRN will not meet in January, but we will be in contact by email to continue planning for the 2018 KARRN conference.

We’ll be back to our regular times for meetings in-person and by Zoom on Tuesday, February 6 at noon.

PCORI Data presented at Kentucky Rural Health Association Conference

Pat Kitzman and Katy Sutton traveled to Bowling Green on November 16 to present the poster based on our PCORI project. The poster title was “The Road Back Home: Perceived Health and Healthcare Needs of People with Neurological Conditions Transitioning Back to Rural Communities.”
In this study, participants have given their time in interviews, work groups, half-day meetings and Zoom video conferencing. They have shared what their health information sources are and what their own health research priorities are. Participants are working to develop projects to address some of these research questions that they have identified. The findings from this two-year project also will be presented at the annual conferences of the American Occupational Therapy Association and the American Physical Therapy Association next year.

North American Spinal Cord Injury Consortium is established – includes KCSCI

 

We were excited to hear about Kentucky Congress on Spinal Cord Injury’s latest news. They, along with other states’ organizations have grouped together to form the North American SCI Consortium (NASCIC). The purpose is to convene organizations in North America that advocate, represent or communicate with people living with spinal cord injury. Their inaugural meeting was October 12, 2017, and their initial focus will be on research and connecting the research community with the SCI community.

Research study: Meditation for People after Stroke

Patrick Kitzman met recently with Cheryl Carrico and discussed a current project that is based at Cardinal Hill in Lexington. The study will teach stroke survivors a meditation technique and look at the effects on attention. Ms. Carrico is currently recruiting participants, and more information can be found in this recruitment flyer. The researchers hope to expand the medical conditions and the research sites in future work.

 

Article Features Kentucky Care Coordination for Community Transitions

Hazard’s Navigator for neurological conditions, Keisha Hudson, is recognized in a UKNow article for the extensive and innovative services she provides in her community. The health outcomes, quality of life improvements and financial savings of the KC3T program are very much appreciated by patients, families and healthcare providers. Pictured at right is a recent Stroke Support Group. The group, which meets monthly, recently celebrated its two year anniversary.

Upcoming election – Accessibility at polling places

Just in time for elections on Tuesday, November 8, we just stumbled upon this nifty resource through Kentucky’s State Board of Elections website. There are reports specific to your voting precinct through a county drop-down menu. The surveys summarize important information such as parking and sidewalk accessibility.

Here is an example for a random site – Madison Southern High School in Berea. The cover page sum076a102a104a105d104d110-madison-southern-high-school_page_01marizes that “this location appears to be very accessible for voters.” The next 29 pages detail the ADA checklist with Yes/No answers indicated by surveyors.

 

 

“Bottom Dollars” Documentary in Lexington 

We shared the Somerset screening of this documentary with you in July, and now this documentary is coming to Lexington. This free screening and panel discussion about “Bottom Dollars”, an original film about employment for all by Rooted in Rights. “Bottom Dollars” is an hour-long documentary that exposes segregated workplaces and low wages often paid to people with disabilities. Through personal stories and expert interviews, the film presents a vision for better alternatives that promote community inclusion, equal opportunity, and fair wages.

Wednesday, October 25, 2017
6:00 – 8:00 PM
Lyric Theatre and Cultural Arts Center
Community Room
300 E Third Street
Lexington KY 40508

For more information, contact Elaine Eisenbaum at eeisenbaum@uky.edu or (859) 257=6086.

Bravo, Kentucky Congress on Spinal Cord Injury & Independence Place!

 

The 5th annual KCSCI meeting on October 6 was packed full of energy,  information, and fellowship. Cardinal Hill was a wonderful location, as always, and Independence Place did a fantastic job planning, staffing and carrying out the day’s events. Jason Jones and Sasha Rabchevsky provided the framework of the past’s years accomplishments and plans for the coming year. Willis Deitz provided a presentation about Independence Place’s history and services, followed by journalist Lilly Longshore’s session about accessible international travel. After lunch, Mike Esposito shared his experience of producing the wheelchair basketball documentary “The Rebound.” A lively panel discussion offered multiple perspectives, and the Tom Gravitt Advocacy Award was given to David Allgood in recognition of his contributions.

Keep in mind that there are plenty of opportunities to stay involved with Congress throughout the year! Congress is very active on Facebook and posts about advocacy events, and is always in need of interested Advisory Board members.

Planning for New Center

As a natural extension of KARRN, we are in the process of developing the concept for a new center called the Kentucky Appalachian Assistive and Rehabilitation Technology Center. We envision this community-engaged center to be based in Eastern Kentucky  and to provide state of the art rehabilitation and assistive technology services, interdisciplinary research, and collaborative education with high schoolers through professionals.

To view the prospectus publication, click here.

Falls Prevention in Madison County

On September 22nd, the first day of Fall, a network of service providers will offer fall prevention expertise at the Falls Prevention Awareness Day Event. This interactive resource fair is designed to help those who wish to lower their risk of falling.

free lunch will be provided by Arcadian Cove for those who preregister by Friday, September 15. Call the Madison Count Extension Office, 859623-4072. Click here for the flyer.

2017 Bluegrass Area Laryngectomy Conference

Please save the date for the 2017 Bluegrass Area Laryngectomy Conference on Saturday September 16, 2017.

Course Description:  This intermediate level one-day course provides participants with a basic understanding of surgical management of laryngeal cancer, communication options after total laryngectomy, diagnosis and management of lymphedema, evaluation and treatment of dysphagia, and pulmonary rehabilitation post laryngectomy. Additionally, attendees will participate in hands-on and observational labs with patient volunteers. Areas addressed in the hands-on and observational labs will include:  tracheoesophageal voice prosthesis (TEP) troubleshooting skills, artificial larynx device selection and parameters for teaching functional communication, as well as tracheostoma management strategies, baseplate use, pulmonary rehabilitation via heat and moisture exchangers and use of hands-free devices.

To view the conference’s Agenda, Program Objectives, Instructional Faculty, CEU information and Registration,  click here.

For registration information, please call Tammy Jo Edge at  859.218. 0493
For content information, please call Tammy Wigginton at 859.218.0471

“Bottom Dollars” Documentary in Somerset

Join Senator Rick Girdler for a FREE screening and panel discussion about “Bottom Dollars”, an Original film about employment for all by Rooted in Rights.

“Bottom Dollars” is an hour-long documentary that exposes segregated workplaces and low wages often paid to people with disabilities. Through personal stories and expert interviews, the film presents a vision for better alternatives that promote community inclusion, equal opportunity, and fair wages.

 

When: July 27, 2017, 6:00 p.m.
Where: The Center for Rural Development, Somerset KY

Presented by:

  • The Commonwealth Council on Developmental Disabilities
  • Kentucky Protection and Advocacy
  • UK – Human Development Institute

Epilepsy Foundation of Kentuckiana: Welcome to KARRN

Patrick Kitzman recently met with John Mustain, the Director of Veterans Outreach at the Epilepsy Foundation of Kentuckiana. This organization offers education programs, advocacy and support to people with epilepsy and their families. Operation Outreach is a program for veterans who have developed seizures following traumatic brain injury (TBI) and post-traumatic stress. KARRN is pleased to add the Epilepsy Foundation to our growing list of partners and collaborators – stop by their table at our KARRN conference!